HUMAN MEDICAL TESTING
with Susan Cox, Ph.D., Associate Professor and Michael Smith Foundation for Health Research Scholar
What are the Ethical Implications?
In Canada and elsewhere there is considerable effort is devoted to the ethical review of health research involving human subjects. However, very little attention has been given to understanding what these participants are facing and experiencing. Why and how do they decide to participate in research? Are the risks adequately explained? Do they see their participation as a form of social responsibility or are they motivated primarily by more individualistic benefits? Beyond respect, is there any other compensation that these participants feel they should receive? Who do they trust and why?
Dr. Susan Cox will be referring to data extracted from a recent qualitative study to help define the meaning and experience of being a human subject in health research. Susan will propose that our systems of ethical oversight could be much improved if we moved toward an evidence-based and participant-centered approach.
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Date: Wednesday, January 8, 2014 — 7:15 – 8:30 am
Location: BC HYDRO Building
333 Dunsmuir Street, Vancouver
2nd Floor, Auditorium
(Check-in at Security Desk – Main floor lobby)
Cost: Members – $7.00 Non-Members – $10.00
– muffins, tea and coffee included
**NOTE about Registration & Payments**
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About Our Speaker:
Susan M. Cox, Ph.D. is an Associate Professor in the W. Maurice Young Centre for Applied Ethics and the School of Population and Public Health at the University of British Columbia. She is a sociologist and qualitative health researcher where her work applies the methods of the social sciences to applied ethics research and practice.
Her research focuses on these three main areas:
(1) the use of arts based methods in health research;
(2) research ethics, especially the experiences of human subjects in health research; and
(3) illness experiences throughout the life course, especially as they are shaped by as well as reflected through narrative.
Susan is a member of the Advisory Council for the Arts Health Network Canada and serves as a member of the Research Ethics Board at Emily Carr University of Art & Design. She is particularly interested in ethical aspects of arts-based research and in developing creative approaches to teaching research ethics.
Susan writes poetry when time permits, bakes Italian cakes whenever a suitable occasion arises and would one day like to learn sculpture. For more information please visit Susan Cox and the W. Maurice Young Centre for Applied Ethics.